tag:blogger.com,1999:blog-84374282024-03-13T11:13:46.667-07:00If Only I Were In ChargeRandom thoughts of how things bug me, the Queen Of All That Is Paper.....and, if I were in charge, how they would/should/could be improved. If you disagree, remember who you are talking to!!Marla Bronsteinhttp://www.blogger.com/profile/10934991259431819527noreply@blogger.comBlogger163125tag:blogger.com,1999:blog-8437428.post-52761448824454783802020-11-28T19:12:00.005-08:002020-12-25T19:19:47.131-08:00I OWE YOU<p>Driving on roundabouts makes me think of my friend Charee. Charee passed away the day before Thanksgiving this year. </p><p>Charee did not die because her body was sick. Well, it was sick when she died, but that’s because her brain killed it. Well, that’s not true either, her brain was sick. She was a young 58 year young woman who died from complications from Alzheimer’s.</p><p>I don’t know what symptom she noticed first. Whatever it was, the result was that she left the job she loved while at a career high, moved to a new town, and never felt able to work again. She even quit playing online board games with me about a year after she left. (And we had been playing online together for more than five years. Multiple games at a time…)</p><div class="separator" style="clear: both; text-align: center;"><a href="https://1.bp.blogspot.com/-ygSY1lLvyzk/X8MElFe46lI/AAAAAAAACQw/fV3s6OGNZX4QHPoxfZ9am-Ya_b2FUO9VACPcBGAYYCw/s960/1376592_177254085799774_1117915722_n.jpg" style="margin-left: 1em; margin-right: 1em;"><img border="0" data-original-height="960" data-original-width="575" height="320" src="https://1.bp.blogspot.com/-ygSY1lLvyzk/X8MElFe46lI/AAAAAAAACQw/fV3s6OGNZX4QHPoxfZ9am-Ya_b2FUO9VACPcBGAYYCw/s320/1376592_177254085799774_1117915722_n.jpg" /></a></div><br /><p><br /></p><p>During a visit to town, early in her diagnosis, she made a short stop at her old job. </p><p>Afterwards, I took her out for coffee. (Greg trusted me for twenty whole minutes to not lose her.)</p><p>That’s when she told me the roundabout story. Before her formal diagnosis, she was driving in her hometown, she found herself in a roundabout and couldn’t figure out where or how to pull off. As she drove around and around she got more and more panicked. As I recall her telling, she pulled over and called her son to help her. Which, of course, being the great son that he is, he did.</p><p>This conversation happened just six years ago.</p><p>I was lucky enough to visit her in Spokane twice. The first time, was not even three years later. She seemed to recognize me, and knew my name. (I was later told me that she had been “prepared” for my visit. They might have even showed her a photograph.) We walked a few laps around the interior of the facility, then we thought it might be nice to go outside. I noticed her hesitancy. We went to her room to switch out of her slippers into real shoes. There was a keypad to the door to get to the hallway from the main building to her room, the locked doors protected residents from “wandering.” Once in her room, she pointed to her shoes, sat down in her chair and stuck her feet out at me. After a moment, I realized she wasn’t kidding. I took a shaky breath to keep me from crying, and I changed her shoes. We walked around outside a bit. I pointed out a resident’s window filled with solar flowers, dancing back and forth. Charee smiled.</p><div class="separator" style="clear: both; text-align: center;"><a href="https://1.bp.blogspot.com/-xbW1Nb9mGKE/X8MNGHrKUWI/AAAAAAAACRI/7vcC0kG2Pp869XEnj3bzRnEzyOla9fA7ACLcBGAsYHQ/s1280/IMG950972.jpg" style="margin-left: 1em; margin-right: 1em;"><img border="0" data-original-height="960" data-original-width="1280" src="https://1.bp.blogspot.com/-xbW1Nb9mGKE/X8MNGHrKUWI/AAAAAAAACRI/7vcC0kG2Pp869XEnj3bzRnEzyOla9fA7ACLcBGAsYHQ/s320/IMG950972.jpg" width="320" /></a></div><br /><p><br /></p><p>We returned to the facility and as we sat on a couch by the front door, I asked her if she was scared. And then she started to cry. She quickly stopped herself and changed the subject to other things. I told her stores of former co-workers, with each story she smiled and gave a little laugh. When I was describing one of them by “reminding” her of their spouse’s name, she snapped at me in good humor, “I know who he is Marla! I haven’t completely lost everything yet.” And she laughed, breaking the tension.</p><p>For the past many months, she has been mostly unresponsive. When I went to see her the summer of 2019, I knew it would be for the last time. I found her in the solarium, waiting for, what? Lunch. Did she even know why she was here, if she even knew where “here” was?</p><div class="separator" style="clear: both; text-align: center;"><br /></div><div class="separator" style="clear: both; text-align: center;"><iframe allowfullscreen="" class="BLOG_video_class" height="266" src="https://www.youtube.com/embed/xEeujFnmRtI" width="320" youtube-src-id="xEeujFnmRtI"></iframe></div><i><span> <span> <span> <span> <span> <span> <span> <span> <span> <span> <span> </span></span></span></span></span></span></span></span></span></span></span>I was holding her hand with one hand, I swear she </i><div><i><span> <span> <span> <span> <span> <span> <span> <span> <span> <span> <span> </span></span></span></span></span></span></span></span></span></span></span>was nodding her hand "yes" when I asked her if </i></div><div><i><span> <span> <span> <span> <span> <span> <span> <span> <span> <span> <span> </span></span></span></span></span></span></span></span></span></span></span>she was going to kick my ass at the gym.</i><br /><div class="separator" style="clear: both; text-align: center;"><br /></div><div class="separator" style="clear: both; text-align: center;"><br /></div><p>By then, she basically had no use of her hands or legs, and was leaning back in a reclining wheelchair. She had lost language. I saw a spark of recognition in her eyes. Did she know me? Have a faint memory. Or did she think I was bringing lunch?</p><p>Before she left Whatcom County ten years ago, we had gone out to lunch together. We knew at that point that she was leaving her job, and that I was headed into some very intense surgical procedure. At the end of the meal, she grabbed the check. I looked at her in shock, and she said, “you pay next time.” I told her I would owe her forever. That day, in solarium I challenged her to kicking my butt in the gym. I leaned over and said in her ear “I’m here to take you to lunch. I owe you, remember?” And she laughed.</p><p>I decided to share this on social media, even though it's a personal reflection. There are folks who follow this page who might know my friend Charee. If you did know her, then you know that when Charee had your back, you could never fail. If you didn't know her, maybe you have (or are) a friend like that. When Alzheimers came for her, her level of strength and joy was never diminished. I know her passing brought her peace.</p><p>She was one of the people who supported me emotionally from diagnosis of my acoustic neuroma, to treatment, to writing my book. When she was on KAFE radio at the end of 2010, she and her on-air partner Dave welcomed me to talk about GIMMEAMINUTE on the radio. They even got their own Minute for being <a href="https://youtu.be/3KidzLPkg8g" target="_blank">Role Models</a>. (sorry about the auto captioning...) I have those audio files but they're about ten minutes long. I basically talked about myself and did the Role Model minute live and in person.</p><p>Charee got her own <a href="https://youtu.be/43RZx63Rx0o" target="_blank">Shari's Minute</a> for it being her last week on KAFE.</p><p>I will miss her spirit. Godspeed dear friend. I will hold your memory with me always.</p><div><br /></div><p><br /></p><p><br /></p></div>Marla Bronsteinhttp://www.blogger.com/profile/10934991259431819527noreply@blogger.com1tag:blogger.com,1999:blog-8437428.post-59721897515114432412020-03-03T17:42:00.000-08:002020-03-03T17:42:19.236-08:00If I Were Only On The Actor's StudioIn memory of James Lipton.<br />
<br />
1. What is your favorite word? - Wow<br />
<br />
2. What is your least favorite word? - cancer<br />
<br />
3. What turns you on? acceptance <br />
<br />
4. What turns you off? - intolerance<br />
<br />
5. What sound or noise do you love? ocean waves <br />
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6. What sound or noise do you hate? - metal scraping against metal<br />
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7. What is your favorite curse word? - fuck head <br />
<br />
8. What profession other than your own would you like to attempt? - therapist <br />
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9. What profession would you not like to do? - foot surgeon <br />
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10. If Heaven exists, what would you like to hear God say when you arrive at the Pearly Gates? - You did enough.<br />
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<br />Marla Bronsteinhttp://www.blogger.com/profile/10934991259431819527noreply@blogger.com0tag:blogger.com,1999:blog-8437428.post-87898486162369629432019-11-19T15:22:00.001-08:002020-12-25T19:20:02.833-08:00For Bette<br />
<br />
About two years ago, I started regularly reaching out to people to let them know how I felt about them. <a href="http://qoatip.blogspot.com/2018/01/" target="_blank">This</a> is how it started. One at a time for every day for a week, then randomly. It’s been since April and that WAY TOO LONG.<br />
<br />
When the email came this morning, letting me know the health diagnosis, I simultaneously caught my breath in panic and in gratitude. Because I don’t have to wait for the email telling me another long time friend has passed away to make me conjure up fond memories.<br />
<br />
I can tell you right now, because every one of your minutes should be filled with nothing but love and light coming your way. I have known you since I was in the 2nd grade. I was probably 8 or 9 when you were divorced and moved away with my best friend and the others. It was the first time I had a long distance friend.<br />
<br />
That relationship with you that I had at such an impressionable age was life-changing. You were the first “cool mom” i ever knew and I learned a lot about “being” from you.<br />
<br />
Your daughter was the first person I ever knew with hearing loss. The impact of that on me is beyond comprehension, as I have worked with the Deaf community for years and now also suffer hearing loss as an adult.<br />
<br />
Your parents were the most generous strangers I ever was blessed to visit.<br />
<br />
Your tenacity and strength was (and remains) inspiring.<br />
<br />
Words are not enough, but thank you. I wish you peace and good health.<br />
<br />
<br />Marla Bronsteinhttp://www.blogger.com/profile/10934991259431819527noreply@blogger.com0tag:blogger.com,1999:blog-8437428.post-31572873251615979092019-07-16T12:13:00.001-07:002019-07-16T12:13:36.875-07:00The Day Tacoma Rocked my World<br />
<br />
My friend Patrick turned me on to <a href="https://kinseysicks.com/home">The Kinsey Sicks</a> over ten years ago. The first time I heard <a href="https://kinseysicks.com/store#">“Oy Vey In A Manger”</a> I knew I was hooked. When they appeared at the <a href="http://thetripledoor.net/thetripledoor.html">Triple Door</a> in Seattle a few years later, Ken and I got tickets. We sat next to a kid who wasn’t even 21 yet. We struck up a chat and have remained in intermittent contact since then.<br />
<br />
When I heard they were going on tour this year, and that it was “Rachel”’s (Ben Schatz’) retirement tour, I knew we had to go see them again. But wouldn’t it be awesome to bring them to Bellingham??? After a few miles of groundwork, I realized that bringing them to Bellingham was going to suck the joy from my life, so I committed to buying tickets for their Tacoma show, 90 miles away.<br />
<br />
Front Row Center at the Rialto Theatre for the <a href="https://www.tacomaartslive.org/">Tacoma Arts Live</a> program was not as expensive as I would have thought…and they were mine. I purchased the tickets in January, the day they went on sale. All I had to do was wait for July 19. For months, I had the wrong date in my head. Thankful for a FB interaction with one of the Kinseys who confirmed our event date was the 12th, and not the 19th.<br />
<br />
We got to the concert after a LONG 90+ mile, Friday afternoon commute. We got to our seats, right up front and center, me in my T-shirt of Kinsey Sicks swag. Bonus was my lifelong friend Susie was in the audience as well... Neither one of us knew the other was going to be there. What a wonderful surprise to get to hug her that night!<br />
<br />
The show was awesome. “New Winnie” was wonderful. Trixie sang as lovely as ever. Trampolina was more beautiful than I remembered and Rachel was healthy and rambunctious.<br />
<br />
Towards the end of the show, Trampolina came off the stage, walked right up to me and held her hands out to me. As I took her hands she pulled me up I found myself being led to the stage. I started to hyperventilate and thought I might pass out, but I slowed down my breathing so I could pay attention to everything. Winnie took my other hand and they led me up the side stairs to where Trixie was waiting with scarves and other sparkly things to adorn me, and apparently my head, from the photo evidence.<br />
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They sang, I smiled. Really really hard. No seriously, my face HURT for the whole next day.<br />
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<br />
When I looked out into the audience, I noticed Ken had his phone pointed towards us..I thought he videotaped the whole thing, including my fancy footwork dancing with the ladies. Alas, all he caught was the <a href="https://photos.app.goo.gl/ZGSRb5ofHjhKcHrd8">final</a> beautiful, <a href="https://photos.google.com/u/1/photo/AF1QipMBSIf74lGvdD7tR9XG-cy1v0pqaiqVt7ocVqXK">perfect</a> note in harmony.<br />
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<br />
Last week was a crappy week. For a lot of reasons I’m not going to get into here. But Friday night made me forget about what a crappy week last week was. Reality is back but I know that I will still be able to smile and laugh and love again.Marla Bronsteinhttp://www.blogger.com/profile/10934991259431819527noreply@blogger.com0tag:blogger.com,1999:blog-8437428.post-1869678576922685132019-04-24T20:56:00.002-07:002019-04-24T20:56:30.008-07:00MichaelJust thought you should know, You are one of the most wonderful people I know and I hope every day brings you some happiness, joy and love. You deserve it.<br />
<br />
Love,<br />
<br />
marla bMarla Bronsteinhttp://www.blogger.com/profile/10934991259431819527noreply@blogger.com0tag:blogger.com,1999:blog-8437428.post-25004037291587017222018-12-29T14:53:00.000-08:002018-12-29T14:53:02.729-08:00Ken<br />
I appreciate you Ken.<br />
After 32 years married, more than 34 years together, I can say we have had our ups and our downs. I am most grateful that when we hit bottom, you didn’t run for cover and we are stronger than ever.Marla Bronsteinhttp://www.blogger.com/profile/10934991259431819527noreply@blogger.com0tag:blogger.com,1999:blog-8437428.post-13621104021174324872018-03-27T14:41:00.000-07:002018-12-29T14:52:18.272-08:00For DebI think that the cold has potential to make some people cranky.<br />
<br />
Twice in the past four days I was outside for more than 30 minutes and I was FREEZING. I couldn’t feel my fingers for almost an hour. When did I become such a wimp?<br />
<br />
I was thinking back to elementary school in New York, and I SWEAR TO GOD we played outside during recess. Granted, it was almost 15 minutes, but it was five days a week.<br />
<br />
So this Minute came to mind. <br />
<br />
https://marlasgimmeaminute.wordpress.com/2010/01/31/hows-the-weather/<br />
<br />
Which interestingly enough was one of the first minutes, if not The first minute, I did for you when GimmeAMinute first showed up on ENW.<br />
<br />
I remembered today you put me on studio schedule for the month following my surgery. <br />
<br />
It was 8 years ago today, I was back in the studio. this was one of those minutes.<br />
<br />
https://marlasgimmeaminute.wordpress.com/2010/06/07/thanks-for-the-minute/<br />
<br />
But this is one of my favorites….<br />
https://marlasgimmeaminute.wordpress.com/2010/06/27/get-your-stopwatch-out-of-my-face/<br />
<br />
I love you forever Deb, for making that possible for me. Marla Bronsteinhttp://www.blogger.com/profile/10934991259431819527noreply@blogger.com0tag:blogger.com,1999:blog-8437428.post-18019253929338764872018-02-12T12:18:00.002-08:002018-12-29T14:52:38.238-08:00For JulieWHY THIS?<br />
http://qoatip.blogspot.com/2018/01/happier-new-year.html<br />
<br />
Julie, you are truly special. You have worked so hard for so long to crawl from where you were to fight and struggle and grow to get where you are in this moment. <br />
<br />
And so normal. Warts and all. Still on the journey.<br />
<br />
Thank you for sharing your journey, your candidness, your honesty. You help me to think about what others may have gone through to get where they are in that moment. You inspire me on my own journey.<br />
<br />
Thank you for your unconditional love and inspiration.<br />
<br />
<br />
Marla Bronsteinhttp://www.blogger.com/profile/10934991259431819527noreply@blogger.com0tag:blogger.com,1999:blog-8437428.post-11122763241381363482018-02-09T17:00:00.003-08:002020-12-25T19:20:56.523-08:00FOR MELIDAIt doesn’t hurt that it’s your birthday. (or does it hurt?) ;-)<br />
<br />
Don’t make that face…I’m still older than you.<br />
<br />
You are one of my dearest, most consistent, systemically funny, kind, sensitive, organized friends. Ok, maybe you are the most organized… <br />
<br />
And you love deeper and you love forever. This way of being has influenced me.<br />
<br />
Even though we live far apart, I hope you know that I am always a phone call away to listen, and a plane flight away for anytime you need me.<br />
<br />
Happy Birthday sweet friend! <3Marla Bronsteinhttp://www.blogger.com/profile/10934991259431819527noreply@blogger.com0tag:blogger.com,1999:blog-8437428.post-81553864573396582112018-02-09T17:00:00.002-08:002018-12-29T14:53:38.785-08:00For BrittanyI’m sorry to bother you.<br />
<br />
I really have missed our weekly “workouts.” I don’t know if you know how much of a difference you have made in my physical life. I would have sent you a friend request, but I didn’t want to overstep or assume.<br />
<br />
I would have gushed about you more in my article (did you ever see that?) but I didn’t want to overstep.<br />
<br />
But I have been thinking about you. Especially the past two days. I apparently overstepped and messed up my ankle again. I don’t even remember if its the same one I messed up before the wedding (remember you fixed it so I could wear those 2” heels without ANY pain…<br />
<br />
So I just looked through all my notes and I found the stretches and exercises you drew for me to keep my ankle healthy. It was one of the many you drew so lovingly (yes, I have EVERY. SINGLE. ONE.) The one I specifically asked you to set up with stretches and exercises for my writing days is on top of the clipboard. I mostly do them and have been doing very well. Except for my ankle. Which I think I messed up in my BodyCombat class. <br />
<br />
Yes. Still working out at the gym… <br />
<br />
So thank you again, and I really hope you could read between the lines in my article how grateful I am for you. Marla Bronsteinhttp://www.blogger.com/profile/10934991259431819527noreply@blogger.com0tag:blogger.com,1999:blog-8437428.post-36637866010323196642018-02-09T17:00:00.000-08:002018-02-09T17:00:04.753-08:00FOR DIANEYou are such a delicate flower. Soft. Sensitive. Demure. I noticed that about you the first time I saw you when you auditioned for the Lion in Wizard of Oz. <br />
<br />
I’m kidding. The first time I saw you was in Charlie Brown.<br />
<br />
Larger than life, more energy than the Tasmanian devil, with so much talent and stage presence, and yet, your heart is so glued to California, I don’t know that you ever left home longer than you were working on a show or a movie.<br />
<br />
And then you came home to take care of your momma. She is one lucky beautiful woman..I never met her when we were younger, boy oh how she can sell milkshakes to an Eskimo..<br />
<br />
You have always been so kind to me, never made me feel like I didn’t belong or wasn’t part of everything. You are like that with so many people..I watch the videos you make now, always making everyone in the room feel like they are the focus of all of your attention. <br />
<br />
You make me want to be a better writer. Thank you for your inspiration.Marla Bronsteinhttp://www.blogger.com/profile/10934991259431819527noreply@blogger.com0tag:blogger.com,1999:blog-8437428.post-48006223566720212022018-01-31T15:26:00.000-08:002018-01-31T15:26:44.160-08:00For Jules<br />
<br />
Today is your day…. This is for you.<br />
<br />
It doesn’t hurt that it’s your birthday. (or does it hurt?) ;-)<br />
<br />
Don’t make that face…I’m still older than you.<br />
<br />
You are one of my dearest, most consistent, systemically funny, kind, sensitive, loud friends. Ok, maybe you are the loudest… You are smart, talented and creative. <br />
<br />
And you love deeper and you love forever. This way of being has influenced me as we grew up together (and apart) but what has always been a constant for us (besides the puree) is that I can always trust you to be honest with me…even when you are scared I will judge you. <br />
<br />
I respect you so much. Your parents would have come around, Kathy and Maggie are amazing testaments to your love.<br />
<br />
Happy Birthday sweet friend! <3<br />
Marla Bronsteinhttp://www.blogger.com/profile/10934991259431819527noreply@blogger.com0tag:blogger.com,1999:blog-8437428.post-42967872357941777662018-01-31T13:21:00.001-08:002020-03-03T17:50:11.154-08:00For Uncle JoelThe first few weeks of 2018 were painful. Friends and family lost family and friends. I have attended twice as many funerals this year already than I did last year.<br />
<br />
It is time to turn this year around. <br />
<br />
I recently attended a meeting with the Hearing Loss Association and the speaker, <a href="https://melaniecool.com/" target="_blank">Melanie Cool </a>(can I tell you how much I love her name?) talked about the importance of three concepts that will help you find your way to happy. Which I didn't write down, so, with my horrible memory, I had to search on line to find the 3. 1. Gratitude (duh) 2. Zest for life. (yes!) and #3 being "Hope." <br />
<br />
She also talked about how to reframe “I can’t” into “I can.”<br />
<br />
So I got lost in my thoughts about one thing I can’t do. <br />
<br />
I can’t go to one more funeral this year. Ok, so I don't WANT to, if I HAVE to, I will. Because I know I can’t personally keep that from happening. I’m not in charge of that part of the universe. What I CAN do, is tell people who are still here how much they mean to me before it’s too late for me to write or talk, or for them to read or hear me. <br />
<br />
(Of course, if you are reading this, you ARE one of those who means much to me. Even if you don’t think we are “that” close, you are taking time to read this now, so I at the very least, appreciate you giving me a minute.)<br />
<br />
Whatever, for seven days, every day, I wrote to a handful of strangers, friends and family, with whatever sentiment I wanted/needed to tell them before it's "too late." These were things as superficial as a Facebook comment that included a recipe that I was grateful for, or something more profound, like their being in my life changed my life… <br />
<br />
I was able to do this before we lost Bill. I called him and told him the things I needed to say to him. I promised I would be there for Lisette and the boys, and I know it gave him comfort.<br />
<br />
It takes seven repeats of something to make it a habit. (or is it three? Or a month?) I’m still at it.<br />
<br />
Today is your day…. This is for you.<br />
<br />
It doesn’t hurt that it’s your birthday. (or does it hurt?) ;-)<br />
<br />
One of my first memories of you was when you were in the army and you came to visit us and brought Craig and me a leather fringe jacket and t-shirts from Fort Bragg. Another gift I remember is a small red garnet-like ring. (is it a ruby maybe?) I don’t know when you gave it to me, how old I was, or whether it was too big or too small for me to wear when you did. Do you remember that? Would you believe I still have that ring? I never could wear it, and I just couldn’t let it go. It’s in my jewelry box that I see about every day. And every day, it makes me think of you.<br />
<br />
You are my favorite relative. At one time or another, I’ve loved you more than I loved any other uncle, aunt, cousin, sibling and/or parent.<br />
<br />
Having known you all my life, I realize how little of that time we have spent together talking in person or over the phone, but I know for me, the time is very special.<br />
<br />
I dread the day you are not a phone call away. I know it will happen. <br />
<br />
Loyalty and commitment to family is something I learned from you, I observed your consistency in action, and it meant so much to me in my life.<br />
<br />
I want you to know that until my last breath, I will love you, your girls and boys to my core, and I will be there for all of you whenever you ask.Marla Bronsteinhttp://www.blogger.com/profile/10934991259431819527noreply@blogger.com0tag:blogger.com,1999:blog-8437428.post-15344010266513524502018-01-29T21:55:00.002-08:002020-12-25T19:21:11.792-08:00For AbbyToday is your day…. This is for you.<br />
<br />
Since the first time we met at Temple Ramat Zion and you and Nina invited me to come sit with your family, my feelings of gratitude and appreciation towards all of you have been completely unconditional.<br />
<br />
You, Abby, were always the “smart one.” <br />
<br />
I felt silly and vapid next to you, and you never made me feel that way.<br />
<br />
Even thought it was never the three or four of us on a regular basis, when first you lost Nina, and then Marjorie, I felt as if I needed to wrap you in my heart and protect you from any more hurt.<br />
<br />
Of course, I suck at that...<br />
<br />
To this day, I am in awe of you. I don’t think you do what you do for any other reason that you just seem to always be able to put one foot forward and keep moving and trying to make the world better. Even when you are stuck (do you ever get stuck?) you rally. Personally, I appreciate you for what you continue to do for women, for marginalized members of the Jewish community, and for your family. You are my hero.<br />
<br />
In the face of all of your devastating losses, you have continued to inspire me to do better and be a better person.<br />
<br />
<br />
Marla Bronsteinhttp://www.blogger.com/profile/10934991259431819527noreply@blogger.com0tag:blogger.com,1999:blog-8437428.post-70997603287909672802018-01-26T08:53:00.001-08:002020-12-25T19:21:19.993-08:00For LisetteThis is for you.<br />
<br />
It is sorta weird, since your loss is one of the things that prompted this exercise in the first place. <br />
<br />
But today, I want to focus on you, who you are to me, and why I love and appreciate you so much (beyond the 50 reasons you already should know…..)<br />
<br />
You are not my youngest cousin, but you are the first cousin I ever held in my arms as a baby. You were mine, more than my sisters were mine. For the first few years of your life, I saw you A LOT because, well, because that’s how it was done way back then. I never had to change your diaper ( ;-) ) so the magic and mystery remains.<br />
<br />
You are still very magic to me. Your ability to connect with people is inspiring. Your ability to focus your strength is equally balanced by your ability to express your raw emotions. I always admire that in you. <br />
<br />
The physical distance between us and your busy life with the boys has kept me from imposing on your home on a regular basis, but looking back, I realize I have spent as much time, if not more time, in your presence in the past five years as I have with any other member of my immediate family. I appreciate that you opened your home and your heart to me in such a difficult time.<br />
<br />
I will always be here for you. I am a text, a phone call, a plane, bus or car ride away.<br />
<br />
I love you always sweet cousin.<br />
Marla Bronsteinhttp://www.blogger.com/profile/10934991259431819527noreply@blogger.com0tag:blogger.com,1999:blog-8437428.post-86818322752560431092018-01-25T14:22:00.002-08:002020-12-25T19:21:27.524-08:00For GailHappy Anniversary!!!<br />
<br />
This is for you.<br />
<br />
You are my oldest (read “longest lasting”) and dearest friend. That is no small task, given we have remained friends while we live across the country from one another. We have lived apart nearly four times as long as we lived in the same time zone. When we are together, or when we talk, whether it’s a week, a month or a year, even with catching up, is as if no time has passed and we are comfortable together. (at least, you always make me feel comfortable…)<br />
<br />
You know just about everything about me…all of my family, all of my boyfriends. You were there when I got married. You and I have never had an argument (that I am aware of) and that is a major milestone. I argue with EVERYONE at least once! <br />
<br />
You are more than my friend, you are the sister of my heart…as different as we are, as multi-talented and artistic as you are, you never make me feel inadequate. You are my hero, you are my rock.<br />
<br />
Love you always, my dear friend.Marla Bronsteinhttp://www.blogger.com/profile/10934991259431819527noreply@blogger.com0tag:blogger.com,1999:blog-8437428.post-32185549425695802792018-01-24T09:00:00.001-08:002020-12-25T19:21:41.693-08:00This is for Cindy Smooch<br />
As one of my oldest (read “long term”) friends, we have a lot of history. I hold in my heart complete gratitude for you being my friend when we were teenagers (and I was the awkward one, you were the cool one) and all the time we spent together your last year in high school. <br />
<br />
The universe seemed to feel it was important for us to cross paths after that…first in downtown LA which led me to live in my coolest apartment in Long Beach. Years (ages) after that I found you again here in Bellingham. <br />
<br />
We were together for broken hearts and broken relationships..parenting woes and joys..and continue to this day with Issues with siblings and parents. <br />
<br />
Even though we rarely see each other (and usually, that’s to celebrate birthdays…ahem…) After all these years, after all that we have been through, apart and together…your friendship and our history is very dear to me.Marla Bronsteinhttp://www.blogger.com/profile/10934991259431819527noreply@blogger.com0tag:blogger.com,1999:blog-8437428.post-37050504818810833682018-01-23T14:28:00.002-08:002020-12-25T19:21:51.108-08:00This is for Daniela Giles - I don't even know you.This is for you. I don't even know you.<br />
<br />
Earlier this year, I joined a FB Low Carb group. This WOE* (Way of Eating) has helped me lose 30 lbs since May. Today was an “off day” but for the most part, I’m pretty good about this and eat meals and keep snacks to “on program.”<br />
<br />
But oh, how I have missed my sushi.<br />
<br />
Now, anyone who knows me, knows that I do not believe that cream cheese belongs within a football field of sushi. I don’t recall seeing any “California Rolls” when I was in Tokyo many years ago. but then, mostly I ate raw fish w/o rice at all…<br />
<br />
But I digress.<br />
<br />
Today, Daniela posted a link to Keto Sushi and I will be forever grateful, as riced cauliflower has been my BFF for months now. I’m even willing to try it with the cream cheese to bind the rice.<br />
<br />
Thank you Daniela. You have taught me to think outside the box. And my next trick will be to make low carb PAELLA!!Marla Bronsteinhttp://www.blogger.com/profile/10934991259431819527noreply@blogger.com0tag:blogger.com,1999:blog-8437428.post-7109429044754852182018-01-22T15:44:00.000-08:002018-01-22T15:44:28.401-08:00This is for Sherry Spitzer:<br />
<br />
This is for you.<br />
I appreciate you for so many things. Of course #1 is that you talked Ken into placing that ad. :-) But also for being part of our wedding, part of the birth of our first baby, and most recently, for making the effort to be here for what may well be my last large-scale directing gig. And all those photos. But it’s not all about me (I know that surprises you..) For being a good person, through all your own personal tribulations, to always show me it’s easy to be there for someone else. I love you Spitzer. Always will.<br />
<br />
<div class="separator" style="clear: both; text-align: center;"><a href="https://3.bp.blogspot.com/-ERJdruNAgZw/WmZ3Q22QPmI/AAAAAAAABoE/sRm1dpX_zRMOgtbzKAxmS7tiU3m6es5fwCLcBGAs/s1600/spitzer.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" src="https://3.bp.blogspot.com/-ERJdruNAgZw/WmZ3Q22QPmI/AAAAAAAABoE/sRm1dpX_zRMOgtbzKAxmS7tiU3m6es5fwCLcBGAs/s400/spitzer.jpg" width="225" height="400" data-original-width="900" data-original-height="1600" /></a></div>Marla Bronsteinhttp://www.blogger.com/profile/10934991259431819527noreply@blogger.com0tag:blogger.com,1999:blog-8437428.post-75186267571793295352018-01-21T16:14:00.001-08:002020-12-25T19:22:01.154-08:00Happier New YearThe first few weeks of 2018 were painful. Friends and family lost family and friends. I have attended twice as many funerals this year already than I did last year.<br />
<br />
It is time to turn this year around. <br />
<br />
I attended a meeting with the Hearing Loss Association just yesterday and the speaker, <a href="https://melaniecool.com/" target="_blank">Melanie Cool </a>(can I tell you how much I love her name?) talked about the importance of three concepts that will help you find your way to happy. Which I didn't write down, so, with my horrible memory, I had to search on line to find the 3. 1. Gratitude (duh) 2. Zest for life. (yes!) and #3 being "Hope." <br />
<br />
She also talked about how to reframe “I can’t” into “I can.”<br />
<br />
So I got lost in my thoughts about one thing I can’t do. <br />
<br />
I can’t go to one more funeral this year. Ok, so I don't WANT to, if I HAVE to, I will. Because I know I can’t personally keep that from happening. I’m not in charge of that part of the universe. What I CAN do, is tell people who are still here how much they mean to me. Of course, if you are reading this, you ARE one of those who means much to me. Even if I don’t “know you” personally, you are taking time to read this now, so I at the very least, appreciate you giving me a minute.<br />
<br />
It takes seven repeats of something to make it a habit. (or is it three? Or a month?) Whatever, for the next seven days, every day, I will be writing to friends and family, with whatever sentiment I want/need to tell them before it's "too late." I hope I get to your personal note before it's too late. <br />
<br />Marla Bronsteinhttp://www.blogger.com/profile/10934991259431819527noreply@blogger.com0tag:blogger.com,1999:blog-8437428.post-36556067138711928332015-02-10T00:00:00.000-08:002015-02-10T07:35:04.519-08:00February 10, 2015<div style="-webkit-text-stroke-color: rgb(0, 0, 0); -webkit-text-stroke-width: initial; font-size: 12px;">
<span style="font-family: Arial, Helvetica, sans-serif;">February 10, 2015</span></div>
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<span style="font-family: Arial, Helvetica, sans-serif;">I know, me…me…me…..today is the five year anniversary that Norman and I parted ways.</span></div>
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<span style="font-family: Arial, Helvetica, sans-serif;">This past summer, on June 10, 2014, I celebrated the 5 year anniversary of my diagnosis, the day I was first introduced to my acoustic neuroma. Norman. That moment is a perfect memory. It was as if my world froze in its place, and I felt like I was drowning in quicksand. Since then, life has been a whirlwind. From diagnosis to surgery was 8 months. (Interestingly—or ironically—I only knew Ken for 8 months before we were engaged.) I guess I prefer fast paced life!</span></div>
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<span style="font-family: Arial, Helvetica, sans-serif;">Today, I’m celebrating February 10, 2010. </span></div>
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<span style="font-family: Arial, Helvetica, sans-serif;">At the beginning of 2015, when I started thinking about this date, I was 30lbs heavier than the day I was wheeled into surgery, thanks to my aging metabolism. At the beginning of the year, I committed to doing some sort of cardio at least 30 minutes every day and I’ve been pretty honest about doing that! (Now I’m only 10 lbs heavier….I’ll take that small success….) </span></div>
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<span style="font-family: Arial, Helvetica, sans-serif;">So many amazing things have happened in the past five years….high school and college graduations. The Army. A book. A new career. Chicago. Hawaii. Elections. Board work. A heart attack (Ken’s, not mine.) Anniversaries. Bat Mitzvahs. Weddings. New babies. Videos. Theatre productions. Music recitals. Too many funerals. I joined the board of the ANA a year ago.</span></div>
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<span style="font-family: Arial, Helvetica, sans-serif;">I’m feeling great. I have my two year follow up scheduled for March 12. </span></div>
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<span style="font-family: Arial, Helvetica, sans-serif;">On April 10 of this year, I’ll be getting on a plane headed to Shanghai, where I will be representing the ANA at the 7th Annual Acoustic Neuroma Conference. Every month since my surgery, I connect with at least one newly diagnosed AN patient. Every month, I get to pay it forward. This is what I believe.…It could be worse. It’s not cancer. Someone I love might get sick. And die. Or just surprise me and die. (see above)</span></div>
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<span style="font-family: Arial, Helvetica, sans-serif;">I’m grateful to you for reading this and sticking with me. </span></div>
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<span style="font-family: Arial, Helvetica, sans-serif;">I’m still here. And I really appreciate you for being here too.</span></div>
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<br /></div>
Marla Bronsteinhttp://www.blogger.com/profile/10934991259431819527noreply@blogger.com2tag:blogger.com,1999:blog-8437428.post-28637160155141295112014-11-25T15:03:00.001-08:002014-11-25T15:03:36.049-08:00They are calling our row<div style="margin-bottom: 0in;">
<br /></div>
<div style="margin-bottom: 0in;">
I lost yet another friend this week.
To cancer.
</div>
<div style="margin-bottom: 0in;">
<br />
</div>
<div style="margin-bottom: 0in;">
Her name is Beth. She was a massage
therapist in her career. But she was more than that. A sister. A
daughter. An aunt, a cousin. She was everyone's friend, and she fed
stray kittens.
</div>
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<br />
</div>
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Our relationship was short, about five
years.</div>
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<br />
</div>
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After I was diagnosed with my brain
tumor, she contacted me.
</div>
<div style="margin-bottom: 0in;">
<br />
</div>
<div style="margin-bottom: 0in;">
"I hear you are looking for people to
walk with you. I'll walk with you."</div>
<div style="margin-bottom: 0in;">
<br />
</div>
<div style="margin-bottom: 0in;">
Honestly, when she first contacted me,
I could not even see her face in my head. Our paths
had crossed briefly and intermittently when Ken and I were attending
the Bellingham Unitarian Fellowship.
</div>
<div style="margin-bottom: 0in;">
<br />
</div>
<div style="margin-bottom: 0in;">
But there she was.
</div>
<div style="margin-bottom: 0in;">
<br />
</div>
<div style="margin-bottom: 0in;">
So we went for a walk. And then we
went for another one. And then, after a while, she offered to gift
me a massage. Ten days before I had my surgery, we both imagined
Norman shrinking from the size and consistency of a walnut, to the
size of an almond.</div>
<div style="margin-bottom: 0in;">
<br />
</div>
<div style="margin-bottom: 0in;">
After my surgery, I rarely saw her.
She was not part of the regular group that visited me.</div>
<div style="margin-bottom: 0in;">
<br />
</div>
<div style="margin-bottom: 0in;">
A few years after my surgery, I found
myself with an extra ticket to the Motherlode concert at WWU. I put
it out on Facebook that I had an extra ticket, and we got to sit
together. I think that was probably the last time I communicated
with her until after Ken's heart attack.
</div>
<div style="margin-bottom: 0in;">
<br />
</div>
<div style="margin-bottom: 0in;">
I only heard she was sick right after
he got out of the hospital, and she was VERY sick by that time. And
she had been sick for a while. Cancer. Stage 4. Just a little time
left.</div>
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<br />
</div>
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I never knew a thing about it.
</div>
<div style="margin-bottom: 0in;">
<br />
</div>
<div style="margin-bottom: 0in;">
I saw her three times after the day I
found out she was sick. Once, I brought a sandwich to her at her
house. She tried to pay for it. I told her, “next time, you pay.”</div>
<div style="margin-bottom: 0in;">
<br />
</div>
<div style="margin-bottom: 0in;">
I called her to make plans again.
Sadly, things had progressed very quickly, and four weeks after that
sandwich, she was on her way to Hospice.
</div>
<div style="margin-bottom: 0in;">
<br />
</div>
<br />
<div style="margin-bottom: 0in;">
I entered her room, there was quiet
singing. I walked up to her bed, took her hand, got close to her and
said, “I brought you a sandwich, it's your turn to pay.” Her
eyes opened wide, and when she saw me, she smiled. Her lungs were so
filled with fluid, she hardly had any breath to talk. I had time to
kiss her hand, say thank you and goodbye.</div>
Marla Bronsteinhttp://www.blogger.com/profile/10934991259431819527noreply@blogger.com1tag:blogger.com,1999:blog-8437428.post-59749087692570584742014-10-21T10:42:00.001-07:002014-10-21T10:42:52.555-07:00And There Was Music....<br />
I wasn't going to do another public update, but because you asked....<br />
<br />
Since Ken got home Wednesday, things have been chugging along quite well... He walked a little bit that first day, napped a lot, the next day he walked more, napped a little less, and has been progressing more every day.<br />
<br />
He even went in to his office yesterday for about an hour to say hello and to prove to his coworkers that he was indeed alive and plans to at least try to put in a few hours in the office later this week.<br />
<br />
He's home today, gathering up energy to do his trial run tomorrow, working for only 4 hours while I'm on standby to scoop up and rescue.<br />
<br />
But what about Thursday and Friday? I have a business trip scheduled for the weekend, leaving Thursday morning. Zoe is on board to drive him to and from work on both days, and his mom lives close by, so if he can't hang in there for four hours, he can either hang out at her place, she can take him home, or, God forbid, get him to the doctor or ER.<br />
<br />
Am I a bad wife for wanting to go to Dallas for my board meeting this weekend? I've had this on the books for a year. But it's only ten days after his heart attack.<br />
<br />
Am I babying Ken if I don't go?<br />
<br />
Am I babying Ken if I think he needs someone here overnight?<br />
<br />
If I'm not here cooking for Ken, will he be able to cook for himself?<br />
<br />
Zoe is spending the night Thursday. She offered to make soup if I buy the ingredients. If I don't hear from her before Wednesday, the soup ain't happening. Ken and I already talked about this, and he's agreed to have her take him to go pick up a roasted chicken at the grocery store.<br />
<br />
So then, what if she makes the soup? What about the other days and the other meals?<br />
<br />
Does he have the energy to cook? Does he know what to make that is “good” for him now? In the past when I would go away, it was fried chicken or beef burritos. And we know THAT'S off the menu!!<br />
<br />
Caleb is coming up (really late) for Friday and Saturday overnight.<br />
<br />
EUREKA!! Ken called his Mom to bring him dinner Friday night!!!!!! Everyone wins.<br />
<br />
When Caleb is here for Saturday, I don't know if (or what) he can cook. I know he can make omelettes (Ken can't eat eggs) and quinoa.<br />
<br />
I can do all this planning to ask for help to bring over a meal for Saturday, but am I babying him if I don't let him ask for help or fend for himself?<br />
<br />
Am I in denial that he is still a ticking time bomb and still to much in recovery to leave alone most of the day? Should I just cancel my trip?<br />
<br />
(later that same day….)<br />
<br />
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<a href="http://4.bp.blogspot.com/-jEDO9BicLAk/VEaa9aFNiUI/AAAAAAAAAbo/jlf9eaBQwik/s1600/kenny.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" src="http://4.bp.blogspot.com/-jEDO9BicLAk/VEaa9aFNiUI/AAAAAAAAAbo/jlf9eaBQwik/s1600/kenny.jpg" height="310" width="320" /></a></div>
<br />
<br />
OH MY GOD HE IS PLAYING THE ENGLISH HORN!!!!!<br />
Ken picked up the English Horn and played for about a half hour. I admit I had to restrain myself. My initial response to hearing the music flowing upstairs from his study was to run down there and check on him.<br />
<br />
Is he clutching his chest? Is he flushed? Does he feel/appear light headed?<br />
<br />
But I waited.<br />
<br />
For ten whole minutes. Then I went downstairs.<br />
<br />
None of that.<br />
<br />
He was smiling. He said he felt pretty good, out of shape, but normal out of shape. (Anyone who plays a double reed will know what this means.)<br />
<br />
He played for a little while longer.<br />
<br />
But the bottom line?<br />
<br />
He can still play.<br />
<br />
And I suppose that means he will survive without me.<br />
<br />
Maybe that's more me letting go than him moving on.Marla Bronsteinhttp://www.blogger.com/profile/10934991259431819527noreply@blogger.com1tag:blogger.com,1999:blog-8437428.post-18521777044612245662014-10-15T21:21:00.002-07:002014-10-15T21:21:23.253-07:00Ken Is HomeIn one piece (with two extras.) That and pills, pills pills. Pills for the morning and night to make his heart, back and tummy happy. Apparently, he has just committed himself to a lifetime relationship with his cardiologist AND the pharmacist!<br />
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We are both still in a little state of shock that this even happened to him, relieved that it wasn't worse, and grateful for all the support and good wishes he received from our community. People he hasn't heard from in YEARS wished him a quick recovery. <br />
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Zoe, Caleb and I also have appreciated our friends who have reached out to us, offering words of care and concern.<br />
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Ken is learning to ask for help for things that seem simple, but are beyond the limits set by his doctor. I've only had to scold him once. So far. It was not pretty.<br />
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I also know I'll probably be having some kind of mass purge of the foods he and I may never eat (or drink) again.<br />
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And so, as our happy couple fades back into obscurity, please know that your words of support have meant the world to Ken, and all of us. We don't know how to thank you. <br />
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Offers to help with food and whatever as Ken recovers at home have been pouring in. I can't express to you how this feels, to know how you love Ken as much as I do. I don't know what he, or we, will need in the days and weeks to come. If I can think of something, I will let you know. <br />
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Oh, I know one thing we both need. Sleep! (smile)<br />
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There is ONE big thing you can do for us. Be well. Pay attention to your body. Not all heart attacks are the same. Not all of them are painful chest clutching, elephant weight pressure, and/or keeling over events.<br />
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Don't ignore the atypical signs of a heart attack. They are simple:<br />
Discomfort or pain in other areas, such as one or both arms, the neck, jaw, back, or stomach<br />
Shortness of breath, lightheadedness, nausea, or sweating<br />
Abdominal discomfort that may feel like heartburn<br />
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Oh, and BTW, we love you!!Marla Bronsteinhttp://www.blogger.com/profile/10934991259431819527noreply@blogger.com0tag:blogger.com,1999:blog-8437428.post-7696322956806354742014-10-14T12:26:00.001-07:002014-10-14T12:26:31.456-07:00My Double Reed/Double Stent HusbandThings happen in threes. Celebrity deaths. Home appliance fail. Three days in a hospital.<br />
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Last night, night #2, Ken was weird. He was completely out of it because of all the meds they had given him during the day. You know what they say, the bigger they are, the harder they fall.<br />
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This morning he was back to his "normal" self, he whipped out his IPAD before 7am, ate a heart healthy breakfast (Ok, that's NOT normal) and checked Facebook and email. He though he might be going home today. He's not, but it's nice to hear he feels ready and isn't afraid to get out of here.<br />
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If all goes well, (and why shouldn't it?) I'm banking on him sleeping in his own bed tomorrow night.<br />
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The beauty of spending the best part of the past three days in the hospital with Ken include: <br />
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1. Learning that when things beep in the room I don't need to freak out. It's usually because his arm or head or other body part is in the wrong position, and the computer can't get a good read.<br />
2. It's pretty easy to avoid junk food here. I have not seen one burger or piece of chocolate or any oversized pastry.<br />
3. If you stay in the hospital long enough and behave they move you to the penthouse in Chez Josef. He's got a fabulous private room on the 4th floor, and no longer has to toilet in public.<br />
4. Ken is a lightweight when it comes to drug tolerance. OK, I know I should be more sensitive, but the conversation we had last night would rival ANY post-wisdom teeth extraction video that has EVER been posted on YouTube. No, I did not record any of it. I own it in my head, and I never want to see him that out of it again.<br />
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I'm sort of blown away by Ken's success in the “bromance” department. Maybe it's the oh-my-God-I'm-almost-the-same-age-and-mortal-too response. His boy/men-friends are crawling out of the woodwork, and I personally can't be more touched by your concern, calls, email and FB comments and chicken soup.<br />
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His response to some smart comment about his future eating habits.<br />
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“I see gluten free toasted latkes in my future.” <br />
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If it will keep him around a bit longer, I'll do it. I'll even bake the latkes. <br />
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Marla Bronsteinhttp://www.blogger.com/profile/10934991259431819527noreply@blogger.com10